How do you measure how much noise is too much? I’d say this was too much
noise! The EEGleads were strategically placed precisely along certain areas of my scalp. They were glued to my head like superglue! It can take weeks to get this glue totally out of the scalp. The technician removes the leads and most of the glue after the test is complete.
A 24-hour EEG helps a neurologist decipher if there is seizure activity during the test. Seizure activity is considered when a misfiring of electrical activity in the brain occurs. This test can only identify any seizures that occur during the test.
As an inpatient on a cardiac unit I should have guessed the healthcare professionals did not understand brain injury since that is considered neurology and not cardiology. Damn…it’s either understand the heart or the brain but not both! They were given an accurate health history. The noise was horrendous and intolerable. Maybe not to cardiac patients, but I’m sure it would have affected any person with a neurological condition!
I wasn’t able to sleep. Who can sleep in a hospital anyway? A new patient was admitted to my room in the evening hours just after dinner time. As expected, the patient was monitored throughout the night and that’s a good thing! I was happy to see this was a highly functioning hospital unit.
The lights never went out. The employees never stayed out of the room. The talking was excessive among employees. It seemed like a New Year’s Eve party, minus the additional noise makers and party hats. Had I of known, I would have brought the accessories along! It was August, so the party didn’t begin yet! I guess we had about 4 months to prepare for the big blast!
By 4:00 am I had enough. If you don’t have a brain injury you might not understand this level of frustration with noise and light sensitivity. I usually remove myself from the situation when the noise is out-of-control. I’ve learned to tolerate noise and distractions better then I did immediately following injury. It’s an adjustment, but it does get better … at least a bit better!
I hardly understand why the noise becomes so bothersome, but it does. This is one way to measure the intolerance of noise with the brain injury clients.
I reached up and with one hard jerk all the EEG leads that were literally glued to my scalp were removed! They thought it was seizure activity because they never saw this happen before. I knew it was not seizure activity. Besides, how many of you have had enough is enough with the noise situation? I’m sure plenty of you! With or without brain injuries.
Next time (I hope there never is one!), take the party hats and noise makers and insist the party be held in a different location…otherwise take your business elsewhere.
Many survivors of traumatic brain injury have complications of autonomic instability. An area that affects the functions of the heart, lungs, breathing, blood pressure, pulse, bladder, kidneys, and anything that is not controlled by voluntary muscles.
How hard is it for healthcare professionals to understand that noise and light sensitivity is extremely difficult for anyone at anytime to tolerate, especially when they are not well and have a history of brain injury? I deal with autonomic dysreflexia and adrenal crisis and removing the stimuli is vital or it can be life threatening. Maybe this reaction was a natural way to save my own life!
Does it help to give a history of traumatic brain injury when being admitted to a cardiac unit? Cardiac deals with the heart, so who cares about the brain? Who cares about rest? Who cares about what you say?
It’s all about monitoring the heart. It’s all about watching the monitors, not the patient. Who would think that keeping a patient awake all night is a problem? Suggestion: If you are ever inpatient post your own sign on the door and above the head of your bed “NOISE INTOLERANCE & LIGHT INTOLERANCE” and leave a basket of party supplies outside the door!