This is something many individuals go through with chronic medical issues. You ask the question should I leave the house or should I stay home. One is always believing it will be a good day, so you go about the plans for your day. It turns out this is more of a typical day in the life of all the above mentioned individuals. Please laugh along. You may be able to identify these situations with either yourself or a loved one. I welcome any of your personal “laughter moments”!
A while back I was standing in line at Costco. I suddenly felt ill without warning. A relatively common occurrence dealing with autonomic instability, but this time nothing I did helped. I just needed to get out of the store quickly.
If you tell anyone you are ill, they’ll call an ambulance! So you can’t ask for help if you want to stay away from emergency rooms. The lines were long. The only way I felt I could get out quickly was through the self-scanning lane. I never did it before. I also needed my cart to lean on. So no matter what way you look at it my cart had to be empty.
I started scanning my items. The light or sound kept beeping. I couldn’t figure it out. I just decided it was scanning my items and I threw my items after each scan to the bottom of the belt in this check-out lane. After visibly upset I finally realized that the beeping sound meant it didn’t scan my items. At least I figured it out!
I bet they already called security and the local police to arrest me! I re-scanned the items and I was out of there. I was feeling hot, so in the parking lot I was taking off my shoes and socks. I knew this would help cool the body off.
Now they probably thought they had another reason to have the security and police arrest me. I think about all the cameras in these places and wonder how many TBI survivors or anyone dealing with chronic medical issues they catch on these cameras and think they are criminals? Too many innocent TBI survivors are already in jail for doing things they are not aware of. Instead they label them as “criminals”.
I stopped at Costco to get gas and pick up a couple items. It just wasn’t my day. They didn’t have gas at this Costco. Oh…how difficult when you’re trying to accomplish things and everything turns to crap.
From Costco, I continued on to my appointment for oxygen hyperbariac therapy and needed to stop at McDonald’s for an ice-cold soda. I was so hot! Now, wouldn’t you know all the school children got out of school early and happened to be at this McDonald’s! Yuk…so much noise, but I was extremely thirsty! Besides I’m frugal and that $1.00 unlimited ice tea/soda was just what I needed!
If anything would have happened no one would have believed I went to McDonald’s on my own free will! Was I being held hostage? I rarely drink soda and go to fast food places. I made it to my appointment but I wanted to cancel…I didn’t feel well enough. I know this is a day in the life of anyone with TBI and chronic medical issues.
The next day I decided I should take my temperature. I never put all the symptoms together, but when I couldn’t get out of bed I knew something was wrong. Yep, 106 degrees! I knew I was feeling bad…and really bad! On these bad days, it’s hard to tell if it’s the usual bad days or unusual bad days. There’s a very fine line between the usual and unusual bad days! At least for me.
I was taken to the hospital in an ambulance, but left off in the waiting room even though they knew my fever was over 106. I wonder if it ever occurred to them that I could have something contagious! I didn’t think I’d be able to sit there very long and asked called my son to pick me up.
Blood infection gram positive Cocci and hospitalized. It wasn’t the blood infection or sepsis that scared me…it was the hospitalization! I started feeling better quickly, and better than I ever did in nearly 18 years! It seemed like another miracle. That was short lived!
It was explained that since I was receiving intravenous steriods for the adrenal insufficiency I would feel as though my body was making and regulating adrenal hormones, which was before injury and is normal in nearly everyone. The levels were constant receiving adrenal steroids by intravenous. When the IV steriods were discontinued I became weak as I was prior to this acute illness. It was short lived but at least I know the diagnosis is correct. What a way to prove a diagnosis!
So did I rationalize the usual bad days versus the very bad days! Someone with TBI can’t really tell the difference. At least I couldn’t. Most of us can’t even get out the door on a bad day…but this is what it’s like when we are out and things change quickly. It’s always unpredictable!
At least I wasn’t arrested and I probably kept the security cameras rolling with some interesting comments. For all I know they have been waiting for me to return, but I haven’t returned to that Costco yet. Maybe next week, and this time I’ll smile for the cameras!
So if you hear a beeping at the scanner don’t throw the groceries to the end of the check-out lane and assume it’s scanning. It’s also not a good idea to get undressed in the parking lot!… but you have to do what you have to do to get by.
This is just one reason people dealing with chronic medical issues stay home. Is is worth all this? The noise and frustration level can get the best of those with TBI. Be prepared if you go shopping with anyone with medical issues either help them, or you may also be arrested!
- Laughter as brain injury medicine – Permanent Hairdo? (braininjuryselfrehabilitation.com)
- Laughter as brain injury medicine – Where is he? (braininjuryselfrehabilitation.com)
- Laugher as brain injury medicine #2 (braininjuryselfrehabilitation.com)
- Laughter as brain injury medicine – Dandelions? Black light? Multi-grain? (braininjuryselfrehabilitation.com)
- Laughter as brain injury medicine (braininjuryselfrehabilitation.com)
- Laughter as brain injury medicine – Words with double meanings (braininjuryselfrehabilitation.com)
- Laughter as brain injury medicine – Are you hot and looking for a fan? (braininjuryselfrehabilitation.com)