Just a brief over view what happened during the years of recovery. I struggled daily with only energy for 3 to 4 hours every day. All my life before this injury I use to sleep not more than 3 or 4 hours a night. I did not have time to sleep. I was simply too busy. I worked, and I worked hard!
I never stopped trying to help others along my journey. Maybe this was my purpose in life! I helped even when others were complaining about how hard it was to work. I’ve worked extremely hard at everything I’ve done in life, but nothing could prepare or compare to the work of rehabilitation from traumatic brain injury.
I don’t say this lightly, because I loved working and never complained. I’ve done things that were definitely hard work but nothing could have prepared me for TBI. I discovered what really was “work” … struggling for survival from traumatic brain injury!
In my mind, I never worked so hard in my life … until I struggled with my last injury. Now that is truly work … recovering from TBI! TBI recovery is WORK! It’s a constant struggle, minute-to-minute, hour-to-hour, day-to-day, week-to-week, month-to-month, years-to-year, decade-to-decade, until a change happened!
Where does it end? Unfortunately, it will take those closest to you through the journey of he**! I keep in mind every injury is different and I’ve had many before this final injury and I’ve recovered entirely … so I thought! Maybe or maybe not?
I’ve never had a massive subarachnoid hemorrhage of brain and spine before so there really are no comparisons. No treatment and no comparisons.
It’s an injury that will never let you take one thing for granted, especially your health and well-being. It’s an injury that others leave you or you push them away. It’s an injury that your entire being is altered and your identity changed as you once knew it. It’s an injury that cuts to the core of your existence.
That former self still lives within … struggles and conflicts of the “new you” and “former self” help through motivation, determination, perseverance, confidence, and anything you were … helped get me through this difficult injury. My entire self was not destroyed! My soul was not cracked and I refused to let that happen!
The change that happened that every individual deserves. I’m not a unique individual, I’m just a common soul. Millions never receive what they should! What changed my life and my family was simple … proper treatment restoring my physiological functioning that could have easily been diagnosed and treated years earlier.
I thank God for this medical genius, who finally listened, poured through nearly two decades of insurmountable medical documentation. Much documentation that was falsified to protect healthcare professionals. I hold out HOPE for all those now traveling this same journey that they have compassionate and caring people surrounding them to lighten this journey and pave the path for an easier road to travel.
I pray for research and other data to help all those with brain dysfunctions, TBI, ADD, Dementia, Alzheimer’s, and chronic illness of all sorts that there will be an easier journey while others do their jobs and make things less confusing, less errors to correct, less struggles that can be handled by others. Life should be less about financial gain, and more about genuine concern, love, caring, compassion and simply … people!
No one deserves additional struggles when dealing with their health issues. We need a proficient, knowledgable, caring, work force to diminish these struggles and assist these individuals in any means so they can improve their health and life when things seems so dull.
How would you change things to make this an easier journey for others? What works for you and what doesn’t?
- Traumatic Brain Injury Does Not Increase Risk of Dementia, According to New Study Led by a Mount Sinai Researcher (prweb.com)
- Devising Solutions for Traumatic Brain Injury: Interview with Dr. Michael Whalen, MD PhD (medgadget.com)
- Less intelligent after TBI? Not even close. (brokenbrilliant.wordpress.com)
- Benefit Rules Eased for Veterans With Brain Injuries (nytimes.com)
- New research on military traumatic brain injury (eurekalert.org)
- In combat vets and others, high rate of vision problems after traumatic brain injury (eurekalert.org)