Recovery from brain injury prognosis is better when younger. Prognosis is always best with proper rehabilitation. Is ongoing rehabilitation cost-effective? Average age for traumatic brain injury is 25. With an aging brain the recovery is poor.
Even though rehabilitation is expensive wouldn’t it be better to help these people become productive citizens again? Most would rather be working than collect a social security disability check, veteran’s disability check, worker’s compensation check, disability check, disability medicare, health insurance, and other benefits that drain the system and does nothing to improve the quality of life for TBI survivors.
- Prognosis better younger
- Prognosis poor with age
- Average age 25 for TBI
- Best with proper rehabilitation
- Rehabilitation cost-effectiveness?
This drains the life out of the survivor and family. It’s a struggle to fight for things and correct errors constantly. Have you wondered why people struggle so much? Many spend hours on the telephone correcting errors with agencies involved. This is time-consuming and drain on the survivor, their families, and agencies involved.
So, given the statistics that the average age is 25 for traumatic brain injury with the best outcome occurring younger rather than older. What choice would you pick? Having your entire life wiped away simply because it’s such a complex injury and it’s not cost-effective to treat traumatic brain injury. It’s an invisible injury that few understand. They don’t get it, till they get one!
- Time consuming, all encompassing, and drains life out of survivor and family
- Daily struggle to make constant corrections & attend appointments
- Don’t get it, till you get one!
Individuals are diverse with so many variables come into play. Just because every life has different experiences. Could this be one of the problems why brain injury is so difficult to understand and treat? How can we understand people with brain injury if we don’t understand human behavior?
Behaviors are difficult to understand, unless you are privileged to know the person their entire life. These behaviors are based upon life experiences.
Behaviors change as a result of TBI the “invisible injury”. We all have different experiences! Different experiences in life, different experiences before injury, and different experiences after injury.
- Behaviors based life experiences
- Accepting change
- Unpredictable moments & days
- Meaningless relationships
- Daily struggles to exist
- TBI cuts closest to core of existence
There is no easy way to say: “just accept this and move on”. Accept what? The thousands of things that have changed, the unpredictable moments, the unpredictable days, the relationships that appear meaningless, the injury that has cut to the core of one’s existence, the daily struggles just to exist … it’s not an easy injury to “just move on”. We all move-on in our own right. Who is judging anyway?
If you’ve been one of the fortunate people that have been able to “just move on”, that’s great! Many of us have been there! Many had previous TBI and kept up … moving on … until the last injuries! The last or final injuries … stopped dead in the tracks with no easy fix like the earlier injuries. Now all the injuries have accumulated.
- Many previous TBI & kept on moving
- Thought everyone recovered spontaneously
- TBI doesn’t seem bad when recovery occurs
- Until … final injury
- Last injuries … recovery difficult
- Accumulated injuries
We all thought everyone could just move on, because we always did … until the injury that stopped the quick recoveries. The quick recovery was the ideal. TBI isn’t bad when you have a quick recovery. The few deficits are easy to overcome. TBI is not life-shattering or life-altering until recovery does not happen as we planned.
So what’s next but to trudge through the educational, healthcare, political, and legal systems. Struggle with bureaucracies, society, or simply the ignorant or uneducated. Is the internal struggle of self more difficult than the other systems one needs to struggle with?
Are these stressors harder to find self-acceptance when others cannot? When self-acceptance occurs how can you move on when others have not accepted your differences?
Young survivors of traumatic brain injury have many personal problems including supporting infants, toddlers, children, and teens. Think about the timeframe in which this injury occurs. Teens, twenties, thirties, or later in life! Surviving TBI later in life is different than earlier in life. While it’s never good to have a TBI but life’s chapters create different challenges.
Imagine enduring hardships from TBI at the end of life when responsibilities are less and it affects fewer relationships? The relationships that are in place have been established over time.
These people become supportive and overall are mature individuals. Because these bonds in relationships have been established over years, this could also create a profound sense of loss among all relationships.
Yet, as aging occurs we are all guaranteed with 100% certainty that we will die one day. Does that make it any easier with a TBI? Absolutely not, it’s an unexpected injury … and everyone remains hopeful.
Why is rehabilitation withheld from those who need it most? Rehabilitation for a broken foot or broken toe is about 6 weeks. Rehabilitation for TBI is nonexistent or if one is fortunate maybe 2 weeks.
Survivors may have different tests including medical testing, endocrine testing, neuro-psych testing, and other things. If no one helps put the picture to a complex puzzle together all these tests are meaningless.
The younger you are the more responsibilities one has in life. Children need their parents. They need their unconditional love and they count on their parents to support them: provide them with basic needs of shelter, food, love, and safety. They need to be supported financially, emotionally, spiritually, and physically. The younger the age the more complex life is.
If TBI survivors died at the time of injury the people that were once supportive would have said “She/He was an amazing person” “He/She was a researcher” “She/He was …and on and on”.
Because of the lack of education, instead they are saying: “He/She is a malinger” ; “He/She is a pain in the a**” ; “He/She is okay” ; “He/She is crazy” ; “He/She is nuts” ; “Don’t talk with him/her” ; “Do you know what he/she said?”; “Do you know what he/she did?”; and the comments are never-ending … until one’s life ends! It’s not bullying. It’s ignorance! It’s life! It’s life with a TBI.
Have you experienced any of these situations? How do you think it could have been better?
- Less intelligent after TBI? Not even close. (brokenbrilliant.wordpress.com)
- TBI Recovery – like life on the high seas (brokenbrilliant.wordpress.com)
- There May Be A Period Of Increased Vulnerability For Repeat Traumatic Brain Injury (medicalnewstoday.com)
- Benefit Rules Eased for Veterans With Brain Injuries (nytimes.com)
- Studies In Iraq/Afghanistan Veterans Show That Even Mild TBI Can Have Lasting Impact (medicalnewstoday.com)