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Category Archives: Chronic illness

Modern technology is great when it works … Technology Tolerance Test

Over the past several years we’ve become increasingly dependent upon home computers, cell phones, iPods, iPads, Tablets among other devices.  They provide instant answers, music, directions, and nearly everything at our finger tips.   When these devices quit working for some unforeseen reason life comes to a stand still and suddenly we are lost, looking for answers and trying to problem solve.

This isn’t a problem exclusively for those with brain injuries, brain dysfunction, and chronic illness.  Everyone using these devices comes across the same situation!  Read the rest of this entry »

 

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Simple tips for TBI, chronic illness, aging, patients …. You need forms filled out and completed by your physician

You have been ill or injured.  You have struggled to recover.  As you recover there are many demands awaiting you.  Now you are bombarded by paperwork.  Paperwork that Read the rest of this entry »

 

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Laughter as brain injury medicine … Who’s brain injured

Who is always to blame but someone that’s brain injured.  Who is believed?  It’s not Read the rest of this entry »

 

Simple tips after TBI dealing with behavioral changes, aggression

Aggressive and violent behaviors are common with brain injuries.  This type of behavior is extremely difficult to Read the rest of this entry »

 

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Laughter as brain injury medicine: Complete the sentences

Laughter as brain injury medicine:  Complete the sentences

I guess I’ve been gone so long and either I can’t figure it out or it’s WordPress.  I choose WordPress as Read the rest of this entry »

 

Thinking of everyone and wishing Seasons Greetings!

Dear Readers,

There have been a few traumatic events and major changes Read the rest of this entry »

 

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Is it TBI, chronic illness, cognitive disorders, dementia or Alzheimer’s? Part 2 of 2

Dementia and other progressive cognitive disorders

Unfortunately those who live with dementia and Alzheimer’s disease develop gradual changes over years and rarely Read the rest of this entry »

 

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Simple tips for brain injury … Things you need to carry while on vacation

You never plan on things happening, but be prepared in case of an emergency especially away from home.  Hours in the emergency room can easily Read the rest of this entry »

 

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Laughter as brain injury medicine …. gas up

Laughter is powerful and healing.  Being observant of others and our surroundings can bring laughter of things we or others do.  You pulled up to the gas pump to fill up.  One goes in to pick up coffee and tea while the other fills the car with gas.  The line to McDonald’s is long.  On the way out one notices Read the rest of this entry »

 

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Is it TBI, chronic illness, cognitive disorders, dementia or Alzheimer’s? Part 1 of 2

What’s the difference between brain dysfunction such as dementia and other progressive cognitive disorders and TBI or other chronic illnesses?

Survivors of TBI and chronic illness rarely Read the rest of this entry »

 

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Laughter as Brain injury medicine … smoothies anyone?

Laughter as brain injury medicine makes life easier.  Have you ever offered someone Read the rest of this entry »

 

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Laughter as brain injury medicine … What’s your vision?

Vision? What vision? What’s your vision of perception?  Have you laughed at some ridiculous comments or created laughter in a room full of serious people? At a recent Read the rest of this entry »

 

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Laughter as brain injury medicine … Is life really a “walk in the park”?

A walk in the park is peaceful.  A time to slow the pace of life and take in environmental delights!  Here you’ll find uncomplicated Read the rest of this entry »

 

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Simple tips for brain injury, illness, aging, injuries, patients … Do you have an advocate? Part 2 of 2

A person that is traumatized or fighting illness needs help. Read the rest of this entry »

 

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Simple tips for brain injury, illness, aging, injuries, patients … Do you have an advocate? Part 1 of 2

No one can be totally prepared to handle a medical crisis alone!  How can you be the patient and advocate along with a body in crisis?  Some are better ready than others, yet these are too very different roles.  If you’ve never been ill or injured you may think you will never need an advocate.  Trust me, everyone NEEDS an advocate! Read the rest of this entry »

 

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Laughter as brain injury medicine … you didn’t step in that did you?

Ever seen those signs “No shirt, No shoes, No admittance!” Read the rest of this entry »

 

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Loving and living with someone when they have Cerebral Palsy, Seizures, and Brain Dysfunction (Part 6 Series)

Cognitive deficits … overwhelmed & problem solving

People with cognitive deficits usually become overwhelmed after misplacing or difficulty Read the rest of this entry »

 

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Laughter as brain injury medicine … Do you hear what I hear

When I woke this morning I heard a faint buzzing or ringing tone.  It sounded to me as though Read the rest of this entry »

 

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Loving and living with someone when they have Cerebral Palsy, Seizures, and Brain Dysfunction (Part 3 of Series)

Brain injury, intelligence, rigidity, moving

She is intelligent and has developed many ways to compensate by using the computer.  Her physical activity Read the rest of this entry »

 

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Simple tips for brain and spinal cord injury, illness, injury, aging, children, adults, everyone … Questions to ask your healthcare professionals

When you come across health issues there are a number of questions you and your advocate need to ask.  It’s difficult to know what questions to ask when your world is turned upside down and you are not familiar with healthcare systems. Either the patient or the advocate, or both should ask these questions.

The best outcome to all health issues is dependent on the educated patients and advocates. Asking the following questions will help you take control, eliminate some stress and struggles with healthcare and focus on ones optimal level of functioning.  This is a comprehensive but not all inclusive list of questions to ask your healthcare provider. Read the rest of this entry »

 

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Laughter as brain injury medicine … hair spray

I reached for hair spray to spritz a little that maintains some style and eliminates the static hair.  Oh, the hair seemed Read the rest of this entry »

 

Loving and living with someone when they have Cerebral Palsy, Seizures, and Brain Dysfunction (Part 2 of Series)

Healthcare based on education, experience (personal or professional?), perception

A couple examples of how healthcare professionals have responded are quite ignorant.  They should be educated, but accusations with children are common and blame parents Read the rest of this entry »

 

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Loving and living with someone when they have Cerebral Palsy, Seizures, and Brain Dysfunction (Part 1 of Series)

Routine works best with brain injury.  Most survivors place things in the same place all the time.  Anything out of order, disrupts many aspects of life. Disruption affects everyone in the famil Read the rest of this entry »

 

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Simple tips traveling by air with TBI, aging, and other physical and mental challenges

Do not let your physical and mental challenges stop you from traveling when you want or need to. You can get preferential seating by Read the rest of this entry »

 

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Missing in Cleveland, Ohio Part 2 of 2

Police were at the door of this home.  There was  “no answer”, but that does not mean suspicion.  It’s a right and as much as we know that the police were knocking at the door where these three young women were being held captive they were not there because they knew the women were there.

What If

There will always be those “what if” thoughts.  So, what if the police shouted out “Police” we could speculate the women may have started pounding on the walls.  On the other hand, they could also believe they were being “tested” and not respond at all.

They were at this house because of an unrelated incident that happened during the employment as a school bus driver.  Yes, it was a missed opportunity but it’s unlikely they would have detected anything unusual.  If the suspect’s own brothers did not know anything he obviously figured out how to cover every thing up, until he made this one mistake a week ago.

Teen & early adulthood vulnerable

We’ve all been through those teen years and I’m fairly certain that everyone has experienced at least one situation in their years that could have ended very differently if another took advantage of vulnerable days.

This sparked another memory with my childhood best friend.  If we were ever missing I’m sure others would have said, “They would never go anywhere with a stranger”!

I’d love for others to take a moment to think back to those vulnerable years and share one experience that could have had a very different outcome if another took advantage of the situation.  These young women need to know that they did nothing wrong.  The person that did wrong was the criminal!

An ordinary teen another example

Cleveland, Ohio

Cleveland, Ohio (Photo credit: Wikipedia)

In my example of one situation it highlights how easily anyone could fall prey to criminal behaviors because of perceived trusting relationships.  At the age of 17 and 16 respectively,  myself and my childhood best friend put ourselves in an unknowingly vulnerable situation.  Was it ignorance?  Naive? Trusting?  It likely was a combination of naïvety, trust, and ignorance.

We never even thought that anything could happen.  It simply never crossed our minds.  Now, that isn’t to say things didn’t happen years ago.  Many things did, and we both had many areas of violence in our life.  Media attention was not what it is today.

We went to see the movie “Love Story” at Parmatown mall.  We took a bus home, but it was the wrong bus line.  Instead of getting home we were lost in a dark area we did not know.  Neither one of us would have been likely to take a ride from a stranger, or from anyone we knew.  We did just what no one else would believe.

The bus driver offered to drive us to our home.  We took that ride and fortunately we arrived safely! This also points out that many people are trustworthy individuals, and simply trying to help.

Had anything gone array everyone would have said, “They’d never go anywhere voluntarily”, and you never know what you would do unless you are in that situation.  One of these teens knew the perpetrator, it was her best friend’s father.  I’m pretty certain most of us have taken rides from people related to our best friend.  That’s why we call them our “best friend”, we trust them and their relationships…until they no longer are trustworthy or we take different paths in life.

To sum up this sad situation with these lovely young women and a child.  I believe in them, and know they will become happy adults and child.  They were assessed at the hospital where my nursing career as I once knew it, ended.  It’s the best place to be with a complicated situation.  Besides, this decade of torture for these young women happened less then one mile of MetroHealth Systems.

Neighbors

The neighbors had no reason to be suspicious.  If they were, they would have reported it.  Everyone has met strange people, but strange doesn’t equal criminal!  The suspects deception was incredible.  He deceived many adults, including his own siblings so it’s no wonder he was able to deceive inexperienced teens.

Many people don’t know what is happening within their own home, their own family, so to expect neighbors to know what is happening is outrageous.  Neighbors are not to blame.   Even the most astute neighbor would not be able to detect this level of deception. The emotional trauma these neighbors are feeling must be insurmountable.  Neighbors reacted when they had the opportunity and they rescued the women when they heard the calls for help.

The slogan “If you see something, say something.” This has very literal meaning.  If you only suspect something, it’s unlikely police would investigate.  They usually never do anything unless something drastic happens.  Hence, this is a primary reason for so many deaths from domestic violence.

Police respond … a fragmented system

Police officers respond to things witnessed, but in a large city prioritizing calls may put your concern at the bottom of the list.  Even when they do respond it may be minimized. A call here and there of concern may not put the entire picture together.

If different officers respond, it’s less likely anyone will put the pieces of the puzzle together.  (Similar to a fragmented health care system issues when one has a complex case and specialists are involved or one seeks another opinion) This is another fragmented system where no one links the problems together until disaster, terrorism, violence becomes insurmountable.

Healing

It is time for this entire community to begin healing.  Their healing will help these young women, child, families and friends to recover. Pray for the three young women and child found alive in Cleveland, Ohio.  May all their emotional needs be supported.

What type of situation have you been in that no one else would suspect?

If anyone is interested in donations to these young women there is only one legal fund at this time.  Cleveland Courage Fund has been set up to help. Click on the link below:  

http://www.newsnet5.com/dpp/news/local_news/oh_cuyahoga/cleveland-courage-fund-donations-accepted-for-michelle-knight-amanda-berry-gina-dejesus

Related articles

**********All material presented on Brain Injury Self Rehabilitation (BISR) is copyright and cannot be, copied, reproduced, or distributed in any way without the express, written consent of Edith E. Flickinger, BSN RN. 

 

 

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Laughter as brain injury medicine … you don’t understand

Communication is unpredictable, just as other symptoms of TBI.  Some symptoms are invisible and others are incomprehensible! As I met up with someone while working out in the pool I asked “How are you doing today?”  her facial expressions of shock Read the rest of this entry »

 

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Missing in Cleveland, Ohio Part 1 of 2

Over the past week International news has spread about Cleveland, Ohio. Read the rest of this entry »

 

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Laughter as brain injury medicine … reading

How many romance novels can one read? It’s reading that kept mother-in-law’s 96 year old mind and memory remain clear.  Who cares what type of reading? She handled finances, checkbook, and all her affairs until the day she died.  She learned so much from reading and learning is something that’s important throughout the lifespan.

..think the opposite

It was our pride that at 96 years old weekly library trips to checkout books and keep the brain and mind functioning were a priority.  She was an avid reader sparked by the sensational sexual romance books.  She told us the books have gotten better over time!

When asked if they ever bore her, she said they never do … “it keeps one’s imagination very much alive when the rest of the body is nearly dead!” 

Have you laughed today? What made you break out in laughter?

**********All material presented on Brain Injury Self Rehabilitation (BISR) is copyright and cannot be, copied, reproduced, or distributed in any way without the express, written consent of Edith E. Flickinger, BSN RN. 

 

 

Does your healthcare professional listen to you? Lost and found!

Have you ever found something and you tried to enlist others to help, but no one did?  Just the thought that no one can be bothered is heartbreaking.  Certainly, if most people were missing Read the rest of this entry »

 

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Simple tips … reminders of additional paperwork

There is plenty of paperwork and financial obligations that continue while dealing with devastating injuries and illnesses.  Do you and/or spouse or significant other own property? Are you paying life insurance premiums? Have you been paying cash for health care providers before insurance pays?

Expenses for your medical care and other expenses incurred from injury and illness are devastating. At a time when things are already difficult, you and your family are supposed to know all the ins-and-outs of a foreign concept …. Disability alone is difficult! Read the rest of this entry »

 
 
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