Simple tips: When YOU suddenly join the TBI club! Part 2 of 3

01 Mar

No one knows their deficits until they are out of formal rehabilitation, when life is no longer structured.  At that moment life suddenly becomes overwhelming and full of distractions and demands!  This is usually the most difficult time for both the survivor and family.

The survivor is experiencing things they’ve never experienced before and the family can’t tolerate the changes in behaviors and unpredictable moments that initially are 24/7, but slowly improve.  At this point, the survivor struggles alone, because “they look good”, and everyone’s life goes on … except theirs!  Life goes on … and that’s just reality!


On your own now

  • No one knows their deficits until they are out of formal rehabilitation
  • When life is not structured
  • When life is full of distractions & demands
  • Most difficult time for TBI survivor
  • Most difficult time for family or loved one when discover what injury entails
  • Time when one struggles alone because: “Looks good” and everyone’s life goes on … except survivor!
  • Life goes on for everyone… that’s just reality!

Many never remember the event and possibly not remember anything within the week or timeframe close to injury.  This includes amnesia of significant events (weddings, funerals, new births).  Most confabulate to fill in memory gaps.  These gaps are frequently filled by recall or repetition of what others have told them and my not be true memories.

It can be a good thing sometimes when memory of the event does not happen.  Horrific accidents and violence are never pleasant to recall and initially this memory loss can help the survivor focus and heal from physical injuries.

Sometimes bits and pieces of recall do happen, as the brain repairs putting together general memory.  The brain has all the pieces, it’s the timeframe in putting the pieces of puzzle back together.

Recovery is unknown.  The unique variables that are known include genetics, education, personality and life choices.

Memories of event

  • Most never remember the event
  • May not remember anything for a week or more before injury
  • Survivor may confabulate to fill gaps
  • True memories may not occur
  • Could be a good thing
  • May develop false memories as events are perceived by others

How will one recover

  • The brain has all the pieces, time for connections to heal
  • Timeframe of putting the pieces of the puzzle back together
  • Part genetic?
  • Education, Understanding, Rehabilitation

Eventually the brain will heal and connections in the neuro-network help with recovery in many ways.  When scarring occurs it will become like a bump-in-the-road or a short circuit in any electrical system.  Sometimes the light goes on, and sometimes it doesn’t!royalty-free-brain-clipart-illustration-1052821tn

New pathways will develop with determination, persistence, healthy lifestyle, nutrition, exercise and sleep.  It has nothing to do with voluntary recovery when one is struggling so hard to improve.

It’s a very long process, but as progress continues it may seem unmeasurable at times.  In the future: compare accomplishments month-to-month, not day-to-day as time goes on.  Acquaintances will leave, but true friends and loved ones will continue support as comparisons become year-to-year.

No one really knows what will happen in the future.  If we did all these accidents would be prevented!  Power of prayer is significant.  In addition the combination of previous educational history, lifestyle and life choices that brought the survivor to the point of injury will be the framework for their best outcome.

While BRAIN recovers

  • Brain heals and connections-pathways that stay intact help with recovery
  • Scarring occurs and becomes like short circuit: Example: A light bulb that isn’t completely screwed in.  Sometimes the light goes on, and sometime it doesn’t!  This is similar to the short circuit in the brain but you forget a word, forget what you were doing, lost your train of thought, and it happens repeatedly throughout one’s day.  It gets better over time with less and less frequently.
  • New pathways develop over time: If scarring occurs the messages will eventually direct around the scar tissue.
  • Pathways take work:  To develop new pathways in the brain one must challenge themselves through determination, persistence, healthy lifestyle, nutrition, sleep & exercise
  • Long process:  Brain heals slowly
  • Progress may seem unmeasurable at times unless you compare longer periods of time: sometimes months and years to measure.  Compare month-to-month, and year-to-year (not day-to-day after the acute phase)
  • Compare accomplishments:  month-to-month, not day-to-day
  • No one can predict the future
  • Impossible to predict process of recovery or duration of recovery: Unique to all individuals
  • Power of prayer is significant to healing
  • Previous education, lifestyle & life choices may help overall self-awareness, help understand rehabilitation process and promote recovery with active participation.
  • Compliance versus Non-compliance may signal further healthcare education for patients. Non-compliant may simply mean lack understanding, not that they don’t want to participate.  Compliance may be that they are only participating, but do not understand why.
  • Someone will need to help with housing, health, and financial matters early after injury:

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4 responses to “Simple tips: When YOU suddenly join the TBI club! Part 2 of 3

  1. markinidaho

    March 1, 2013 at 1:29 pm

    Some of bullet points are difficult to understand, ‘In the know’ sentence structure. Especially in “While BRAIN recovers” Please help us understand what you mean.

    • brain injury self rehabilitation (BISR)

      March 1, 2013 at 4:33 pm

      Thank you so much for bringing this to my attention. I went back and made some corrections. Let me know specifically if there are any other areas or ones that I miss that should be corrected. It’s always good to have others helping so the message is clear. Your comments are appreciated. Take care and stay safe, Edie

  2. brokenbrilliant

    March 3, 2013 at 11:35 am

    Reblogged this on Broken Brain – Brilliant Mind and commented:
    Great post – good reading

    • brain injury self rehabilitation (BISR)

      March 4, 2013 at 11:05 am

      Thank you for the reblog. Spreading information and education is key to understanding, and we’re attempting to help make this an easier road along this journey! Thanks again. Take care and stay safe, Edie


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