Are you exhausted or constantly fatigued after brain injury? Anyone suffering from chronic excessive fatigue or exhaustion? Is it “normal” or “excessive”? You might have an underlying condition that has not been diagnosed or treated yet. 10 Suggestions and more to help find your cause. Has it been a couple years since your injury and you just have NO energy regardless of how or what you try to do, and you just cannot overcome the fatigue/exhaustion? I spent 18 1/2 years of drop dead fatigue. I could only do one thing in a day, it was a gift if I could accomplish more.
I never took one day for granted. Every single morning I got up optimistic but it clearly was not under my power. When I went to appointments or functions it would take me days to prepare for, and could be days to weeks to recover from one event.
Superficially I appeared “good” to the average person. I never presented as though my life was torturous … and it was! If only people really knew what I was going through behind closed doors. I want to open these doors so others can get the help they deserve and need.
It was such a challenge to physically walk into places. I was out of breath, constantly thirsty, and my legs were heavy. Aquatic exercise was my life, except the difficulty walking into and out of the facility was horrendous.
It was the aquatic exercise that most likely kept me alive. For those that are wheelchair bound, you may also have something similar happening, but since you are unable to physically walk independently you may not see this as being the same problem.
Don’t minimize! (I did for years and it got me nowhere.) I highly encourage anyone having issues with daily living, lack of energy, and excessive fatigue to have a full evaluation. Expect that your healthcare provider will tell you that “everything was checked out”.
With this response ask for a printed copy of all your blood work and all your medical records. They are your records and you should keep them. They are usually purged every ten years, so if you need them later they may be gone.
Get another opinion and make sure they are correct. You should be free of all these symptoms. You have a right to Live…and not just Exist!
On a daily basis, within a couple hours I could not do anything. I had no physical energy left. I could hardly think either, but with a room free of distractions my mental abilities improved and I typed on my laptop to document this journey.
I guess I was hoping someone would care enough to help me or resolve what was happening when my body would finally give out…but I doubt that would have happened.
Healthcare professionals would not face the truth! They would blame it on the patient. Now, who will tolerate that? I did only because I knew I was right and I felt their was some help out there.
I believe in the power-of-prayer, but I must admit their was not much in me to survive longer when I finally met a genius in the field of medicine. Yes, I’ve always been stubborn that being a good attribute during this time.
This was a difficult road to haul when I’m facing all these professionals that simply were not listening. Of course it was at the expense in every way … of my family and I.
In addition besides the lack of treatment and the daily struggles I have endured slander, liable and my character defamed through false allegations all at the hands of healthcare professionals and the worker’s compensation system. All this because of misdiagnosis and the invisible injury; but now I can help others with my new-found energy.
I am grateful I did not see my worker’s compensation file until 2011. I wonder if this is even legal to have such devastating things documented that only supported the system and not the person and such false documentation? It’s still a question I have, but don’t know where to turn. Of course with my medical file now it is contradictory. If you have any suggestions or answers let me know.
What I know, I did not have enough energy to waste on nonsense. I will sometime in the future put this file on the internet so others know what to expect and help prevent this from happening to them. With all the negative publicity about people putting in false Worker’s Compensation claims my heart goes out to all those who never get what they deserve.
I truly believe there are more people injured that are not helped, then those who try to screw the system.
Unfortunately, my energy is still limited but I do have more energy now. Before I was not able to function more than 4 hours every day for nearly 2 decades so I’m delighted and we have our life back.
- Have you seen an endocrinologist?
- Have you had extensive blood work done by an endocrinologist? I am not talking about your ordinary blood work performed for multiple reasons in medicine.
- This blood work is highly specialized and ordered by an Endocrinologist.
- Analyzed by this area of specialty medicine.
- Timing of this blood work is essential for the proper evaluation and analysis.
- If you have not been evaluated by an endocrinologist and have not had extensive blood work, please do so to help yourself.
- I strongly suggest you start looking up someone who can help you.
- Ask a nurse for a referral or search the internet.
- Get an appointment as soon as possible. It may take a month or longer for your appointment. It will most likely still take a couple of months before you can get the answers, and hopefully it will help find the underlying cause of your excessive fatigue.
- Remember it is not in your mind…it’s in your head!
If you have seen an endocrinologist and still have the same symptoms you might want to get another opinion from another endocrinologist or ask your endocrinologist if they might consider repeating the blood work. There are always false-positives, hence a margin for error.
And there are those who will not spend the time needed to explain your fatigue issues. Search for the answers, and do not give up! It’s your life, and you are important!
Endocrinologists are highly educated, a well-respected discipline and they are in the best situation to assess, evaluate, diagnose and treat a chronic condition related to the brain functioning related to hormone imbalances, damage to the hypothalamus and pituitary causing system failures.
Click on this link listing all the human hormones. Did you know if only one hormone is deficit it can have a ripple effect on other hormones causing serious effects and consequences on daily living? Take a look at this comprehensive list of human hormones.
Someone is placing a dollar value on your life. By not doing this extensive and detailed laboratory work your life may not improve. It did not for me, until it was done and I was treated.
My life has changed drastically. I could have and may still be able to someday be gainfully employed.
Whatever I do in the future, I will continue to help others self rehabilitate from brain injury, chronic illness, and all the injuries those sustain in life as well as help our American Veterans recover to their optimal level of functioning.
I did not know anything about Hormone Imbalances prior to my diagnosis in 2010. If I did so many years would not have lapsed before my proper treatment. I was not and never will have the education in medicine, but I do know I am a compassionate person and want to educate and help others. Let me remind you I was a high level functioning 38 year old when my injury occurred in 1991.
Where are all the hormones initially secreted that keep our body in homeostasis (balance)?… In the brain! You would think that is a no-brainer! The hypothalamus and pituitary are in the brain. When these areas are damaged it causes your entire body to go haywire.
I am truly concerned that this problem is consistently overlooked and not diagnosed. With further and extensive blood work so many other people could improve drastically, ultimately costing less in the health care dollars of America.
Over a long-term this would be a cost-effective move and I propose we get a movement for all traumatic brain injury patients and anyone suffering from extensive fatigue. Who wants to live like that? Then they wonder why suicide rates are so high? This is preventable!
There is a difference from excessive fatigue and brain injury fatigue. I am an expert on this since I spent 18 1/2 years with excessive fatigue, but now I deal with the “normal” brain injury fatigue.
I recently tried to chalk this up to aging process and the physician brought to my attention that he does not believe age is a cause. He used this example: “When people complain about a leg hurting because of age…he asked “How old is your other leg?” He had a point.
Hormonal_imbalances_after_brain_injuryThis is what I suggest if you see yourself in any situation like the following:
- If you feel so exhausted that you cannot even answer the telephone or talk.
- If you feel that a raging fire in your residence still would not be enough to provide you with energy to leave.
- If every day you have less then 4 hours of energy to get whatever you have to be done to simply exist. This includes your activities of daily living: bathing, dressing, eating.
- This is a significant problem and there is hope for you!
Suffering from Severe Excessive Fatigue check these sites out on Hormone Imbalance. Let’s stop healthcare professionals from overlooking a significant injury to a vital part in the brain that destroys the lives of many people who suffer excessive fatigue, their families, friends and loved ones. Yes, it is in your head!, not your mind!
Who would have ever thought? We count on others helping us and it becomes a level of trust. Believe me, no one knows everything so do not feel that you are hurting the feelings of your physician or healthcare professional.
They simply cannot know it all. You can also fire them as quickly as you hire them as well. They have no problem dismissing patients. You have a right to feel your best!
It is your life. You are a valued human being. I highly encourage you to check this out for you or your loved one suffering from excessive fatigue. This has changed my life after suffering for 18 1/2 years…and it could change yours! Don’t suffer any longer.
This is a very complex situation because hormones control everything and every function in our body. I will give you links to read over, print off and take it to your physician. If you do not have a computer available please get someone to help you.
This is a treatable problem. It is not in your mind! You are not malingering. These are scapegoat diagnoses instead of saying: “I don’t know what is wrong”, “I can’t figure it out”, “I will send you to someone who may be able to help”, instead many healthcare providers just place blame and label patients.
Our healthcare professionals have failed to find the true cause, and hence your life is on hold at the lack of knowledge or the inability for people to look outside of the box. Misdiagnosis are detrimental to your health and life and is passed from one physician to another physician as well as other healthcare providers.
It takes a strong sense of self-confidence for a physician to go against what others have labeled and search further and listen to the patient instead of his colleagues. You can be treated and get better. Do not pass this up, if you are suffering from this excessive fatigue.
The following are some Links to Hormone imbalance with hypothalamus and pituitary dysfunction after brain injury. These are not all inclusive. Please search further to help get better.
- Traumatic Brain Injury and Suicide Video Presentation Part 1 (secondchancetolive.wordpress.com)
- Head Injuries Can Lead to Serious Vision Problems (everydayhealth.com)
- Homeopathy in Chronic Fatigue Syndrome (homeopathicure.wordpress.com)
- Clear the Brain Fog of Chronic Fatigue Syndrome (everydayhealth.com)
- Why am I tired? (drstephencenter.com)
- Emotional Wound Care (eitheory.com)
- Diagnostic Tests for Thyroid Disease (everydayhealth.com)
- Lost & Found: What Brain Injury Survivors Want You to Know (katharinetrauger.wordpress.com)