Loneliness is the Most Terrible Poverty.
This is a well written article that nearly all TBI, brain dysfunctions, chronic illnesses, and an array of health issues deal with. Most readers will certainly understand this this loneliness. This will also offer insight into FM (fibromyalgia), another frequently misdiagnosed, and misunderstood disease. Take the time to read this and leave your comments.
June 29, 2012 at 12:12 pm
I am spending most of my time away from people right now. I find it difficult to keep up with conversations and feel left out most of the time. I struggle to go anywhere busy (I.e a bar) because I can’t deal with the sounds. People look at me with pity a great deal which is irritating, and what I find most irritating is people who don’t spend much time with me telling me things like ‘you’re doing better this week. Keep it up’ – it feels incredibly patronising and they don’t understand the subtle struggles of every day life, like how long it takes for me to get dressed in the morning or how I can’t remember how it feels to not have a headache. Thank you for the link – it reminds me I am not alone.
brain injury self rehabilitation (BISR)
June 29, 2012 at 10:06 pm
I agree. It is the subtle things that become so frustrating after brain injury. The last thing anyone wants is patronizing attitudes. We just want people to understand and become educated about brain injury, brain dysfunctions, and chronic illnesses. I still avoid most noisy places, but when I do attend it exhausts me. I participate as much as I can, but sometimes only because it’s expected…and when I don’t attend I’m always wrong and condemned for not attending by others who don’t understand. Do you nod your head during conversations but you actually can’t follow it? I bet you can’t do instant messaging either…right? It’s not unusual that you’re unable to follow most conversations.