You are the most important person on your healthcare team. I have read countless books over the past 20 years from “How to Get Out of the Hospital Alive”, and YOU The Smart Patient. All of them have powerful messages. Everyone could use the simple tips to keep you healthy. I recommend that everyone retrieve a copy of the Handbook or Guide Book for “YOU” The Smart Patient as An Insider’s Handbook for Getting the Best Treatment. In addition, to keep track of the details that you need in your lifetime of medical care there are electronic flash drive medical bracelets.
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Tips to take control of your health and healthcare needs
Some physicians not always completely honest with patients
Sunday, March 11, 2012
If physicians are not honest who do you or should you trust? This is your life, and you only have one. So who’s listening to the patients and looking for their best interest…health and their life! You need to protect yourself. Read the survey results below, but keep in mind there are still honest physicians and healthcare professionals around.
Survey: Some physicians not always completely honest with patients
Could This Be The Reason Traumatic Brain Injury Is Misdiagnosed and Untreated?
What is the real reason traumatic brain injury is misdiagnosed, untreated or under treated? Do we have enough rehabilitation centers in America to accommodate 1.7 million people every year? Is this a national problem or local issue? I cannot believe they missed the most obvious of all … brain injury. I was the patient with all the issues…but the healthcare professionals still expect you have it all together to let them know what’s going on. What one does know is most head injuries, strokes, and many diseases of the brain are not classic in any way. The emergency room personnel look for only the classic obvious symptoms: one sided weakness, dropping of the facial muscles, slurred speech, and others. These are not necessarily symptoms that appear with the 1.7 million traumatic brain injuries every year. Read the rest of this entry »
Simple Tips to Cope With The Unmentionables After Brain Injury … Blood, Sweat and Tears with Urine, Sweat & Feces
How can you cope with the unmentionable after traumatic brain injury? It’s blood, sweat and tears with urine, sweat and feces. Oh Crap, or Piss-on-it, or just too much Sweat! Any way you look at it I stink! 
The injury is healed, but now you have so many symptoms to live and cope with. Now, who is there to help you anyway? You are at home…big deal! It is a big deal to be at home, but now you have to figure out your surroundings, your role in life, but most importantly how your body now functions or for that matter does not function. Read the rest of this entry »
Thank You
To All Those Who Have Supported Me With Blogging and Website,
This has been a challenge and yet successful endeavor. Our progress has been phenomenal. The response is overwhelming.
I’ve added Link Pages for Hormonal Imbalances, TBI (traumatic brain injury) & Other Related Links, Nursing & Violence, and Vertical Heterophoria at the top of my website under the main picture. This has been a challenge but every bit worth the effort. It’s still a work in progress.
I’d like to thank you for this incredible outpouring of support. Good things are finally happening through this incomprehensible tragedy!
Take Care and Stay Safe,
Edie http://braininjuryselfrehabilitation.com
Are You Really A Different Person After Brain Injury?
How often do you heard you are not the same person? In many ways you have changed but the struggle you deal with is partly owing to all the characteristics who made you what you are today. You are still the same person, in the literal sense. And so much of you can not change. You just function differently physically, emotionally and in life itself. It’s this struggle within that is so difficult. I tried to put into encouraging words the easiest way to understand why you are NOT a different person and why you struggle with this every day. Read the rest of this entry »
In All the Wrong Places for Healthcare or Was It Just All the Wrong Professionals After TBI (traumatic brain injury)?
Expertise is what you are looking for when you are injured or deal with chronic illness. If you have a traumatic brain injury the confusion and multiple symptoms make this a more daunting task to figure out America’s healthcare system. You are not looking for excuses, a pat on the back, or someone to minimize what is happening to you. You are looking for proper medical treatment. 
Especially important would be an expert in brain injury and Physical Medicine and Rehabilitation (PM&R) Physician otherwise known as a Physiatrist. Read the rest of this entry »
I thought of you today
Reflections of what it’s like everyday. The life before never goes away … you live it, feel it, and see it…but can’t touch it!
The Daily, Most-Controlled, and Least Expensive Therapy following Brain Injury, Spinal Cord Injury, and Chronic Illnesses
Are you searching out affordable, consistent, reliable family therapy to restore life after traumatic brain injury or chronic illness? Do you feel as though no one is listening? No one cares or understands? Where is that unconditional love?
What is the best therapy that works, stands by you through thick and thin, and does not pass judgment? When you and the family feel things have stabilized after your injury or illness it may be time to consider something you have not considered before injury. Read the rest of this entry »
Brain Injury Awareness Month
BRAIN INJURY AWARENESS MONTH IS MARCH, 2012
Theme for Brain Injury Awareness is the following:
Brain Injury: Anytime, Anywhere, Anyone
Aphasia, brain injury, prison, Marcus Rosenberger. 2/22/12, life is a gift that not all of us receive…
Laughter and Humor are the key to healing. Take a couple minutes and watch this Grandma Comedy…it’s great!
Click on the above link, then at the bottom of Aphasia, brain injury, prison, Marcus Rosenberger is a u-tube link to see Grandma Comedy.
Enjoy with much laughter!
Weekly Photo Challenge: Down. 4/14/11, my son had just heard his verdict: Guilty.
Marcus is an intelligent young man, who fell victim to the Federal Court system rather than receive ongoing rehabilitation and protection from a SEVERE brain injury. His brain injury left him vulnerable to others, and he is serving time simply because of his honesty. Check out Marcus story and the legal system.
Comic: In The Bleachers
Check out this comic! And you thought that concussion didn’t cause you any problems! Think Again!
Snail Mail is Delivered Almost Every Day. The Best Ways to Manage Mail with Brain Injury, Memory Issues, and Chronic Illness.
The amount of paperwork is insurmountable after brain injury. A time when paperwork is the most difficult to complete and work with, you now have more paperwork than ever before! Now, everywhere you turn you need to fill out papers on: Employment leave, Health insurance, Disability insurance, Social Security, Worker’s compensation, Medicare, Medicaid among others. And no one is prepared to manage this paperwork even without a traumatic brain injury. Read the rest of this entry »
Excellent article on Mild Traumatic Brain Injury.
This article from therapist Luann Jacobs is the most concise and comprehensive description of Mild Traumatic Brain Injury that I have read, as a MTBI survivor. MTBI can be caused by strokes, wounds to the brain, tumors, diseases, concussions (whether from explosions, contact sports such as hockey and football, auto accidents, or falls), and anything which compromises the circulatory or neurological functions of the brain.
At the onset of my brain injury due to a stroke, now 14 years ago, I had to learn to walk again, read again, use the telephone again, and do almost all the daily and other tasks of life too.
It is impossible to imagine, no matter how intelligent and creative one might be, just how overwhelming this challenge is. It is impossible to know the constant fatigue, exhaustion, frustration, and pain which must be endured daily still. It is impossible to know of all…
View original post 1,093 more words
Simple Tips to Manage Fatigue with Brain Injury, Memory Problems, and Chronic Illness to Self Rehabilitate
How can you manage mental and physical fatigue in your daily life? The normal fatigue you feel from brain injury is not like simple feelings of tiredness. It’s far from this. It exhausts all your physical and mental energy and leaves one in a brain fog where you can not think at all or physically accomplish anything. Your limbs feel so weak you just cannot be involved in doing anything until you get rest. Sleep is the only thing that helps you feel better. Read the rest of this entry »
What Happened When My Life Was Turned Upside Down After a Traumatic Brain Injury?
How was I going to get through the holidays with this new worsening of symptoms from traumatic brain injury? I could not tolerate noise, lights, conversations, and just the simple things in daily life. By the middle of December my headaches were getting worse, if that were even possible! My vision was darkening. Read the rest of this entry »
Fatigue After Brain Injury or Anyone Suffering from Excessive Fatigue
Are you exhausted or constantly fatigued after brain injury? Anyone suffering from chronic excessive fatigue or exhaustion? Is it “normal” or “excessive”? You might have an underlying condition that has not been diagnosed or treated yet. 10 Suggestions and more to help find your cause. Read the rest of this entry »
Could this Nightmare with Traumatic Brain Injury be Ending?
I was sure this nightmare with head injury was nearing the end. I guess my expectations were unrealistic. Being well-educated in the field of brain injury and rehabilitation did not prepare me for all that was to come in December 1991. I thought I was better shortly after brain injury but it got worse. Read the rest of this entry »
What do I need? Or where do I go? To relearn my computer or purchase a new computer after brain injury?
My computer is not working like it did before brain injury. I need a computer to help me compensate for my memory and other things. What should I do and where can I go? Read the rest of this entry »
Leaving the Twilight Zone … So I thought! after a closed head injury
If you look okay you are expected to be working!
It was time to get back to work following a closed head injury. I thought everything was going well and my simple concussion was resolved. Oh, if I only knew what was yet to come. So by Monday November 4, 1991 and 5 days later I was ready to return to work. After all a few days have passed since I was hit in the head and certainly there should not be any reason to keep me from working. Read the rest of this entry »
10 Tips in Placing Telephone Calls with Brain Injury
10 tips and highlights to handle telephone calls without distraction and keep focused for those with brain injuries, brain dysfunction, and other chronic illnesses.
So many types of telephones.
Everyone is familiar with the telephone for communication at work, at home or more commonly everywhere one goes with their cell phone. Read the rest of this entry »
Link
Nurses Often Silent About Workplace Violence
Nurses must listen and see why under reporting and lack of change will continue! Why numbers are not accurate for violence against nurses. Article and video includes Australian study with focus on American Nurses and applicable to all nurses.
Deeper into the Twilight Zone with Brain Injury
Feeling puzzled? common symptom after brain injury.
Frequently x-rays and other diagnostic tools are "Normal". Need healthcare professionals to monitor symptoms and clues to changing status.
I did not think I could go deeper into the twilight zone and neither did I think I had a brain injury. After all, I had many injuries prior to this assault and recovered from every single one without residual effects. What was I thinking as a nurse? Read the rest of this entry »
Best and safest exercise for brain injury…brain dysfunction and all other areas of health
Are you having difficulty standing? Is your balance off and you fall often? Are you dizzy? Or are you simply too tired or fatigue? Do your joints ache? Do you think you have had a traumatic brain injury but not sure? Have you been diagnosed with a brain injury or medical condition? Are you a hero that has fought for our country? Are you a disabled American Veteran?
Children in aquatic therapy
Exercise is always important, but now it can be fun! Read the rest of this entry »
Entering the Twilight Zone of Brain Injury…Nurse
CAUSES OF TRAUMATIC BRAIN INJURY
Learning what brain injury is all about. It was nothing like I experienced as a nurse treating the patients with brain injury. Little did I know I was about to enter the twilight zone at work on October 30, 1991. Read the rest of this entry »
Difficulty remembering? Start here to help yourself. Brain Injury?
Forgetting or simply not remembering? Which is it? Well, forgetting is something you have in your memory. Or maybe it is not that simple. It could be something you tried to memorize but could not, then you forgot what it was. It’s all a matter of intrepretion. Remembering is questionable. Was it ever in your memory to begin with, or was it something you tried to remember and could not have. The question is more complex then anyone could believe…until you’ve been there. Read the rest of this entry »
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